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A Los Angeles-San Diego bike ride fundraiser for the sister of Cole Haddon, creator of NBC’s Dracula, had Hollywood execs and creatives pedaling.
Haddon’s sister Kam Redlawsk suffers from hereditary inclusion body myopathies, a rare degenerative muscle disease that has forced the toy designer and graphic artist to use a wheelchair. “Her arms and hands and fingers are already progressing [to] the same fate, which is going to be pretty heartbreaking,” Haddon says.
The ride, held the first weekend in June, has raised $16,500 and counting — donations will be accepted at Crowdrise until June 21, Redlawsk says. The fundraiser’s page can be found here.
Haddon, his wife Lindsay Devlin, also a screenwriter, and her brother Ryan Devlin, who has appeared in series including House of Lies and Grey’s Anatomy, have raised funds and awareness in the Hollywood community, Haddon says. Among the supporters are scribes Chris Morgan (Fast & Furious 6), Edward Ricourt (Now You See Me), and Marc Guggenheim (Arrow), Grimm’s Bitsie Tulloch, Patrick J. Adams (Suits), Much Ado About Nothing’s Riki Lindhome, and musician Cary Brothers.
“There are few things in our industry more inspiring than Kam’s heroism and Cole’s selfless, enduring and passionate support of her,” Guggenheim says.
Reel FX Director of Business and Legal Affairs Julie Chebbi, Siren Digital Studios CTO Sean Lee, and video game developer Neversoft Entertainment senior concept artist Simon Ko were part of the 16-rider team that biked from L.A. to San Diego, camping out for one night at San Onofre Beach.
Bike for Kam, founded in 2011 by Redlawsk and friends Viet Nguyen and Andres Garza, organized the ride — the group’s third annual, after San Francisco-San Diego rides in years past.
The funds go to Advancement of Research for Myopathies, an Encino-based nonprofit devoted to HIBM research. With fewer than 200,000 American cases, HIBM is classified under U.S. law as an “orphan disease” and has not been adopted for research by the pharmaceutical industry. Bike for Kam’s funds contribute to ARM’s study and trials for possible treatments.
“We’re in year three, and the number of people who donate grows,” Haddon says. “It’s very humbling how wonderful some of our friends in the community have been.”
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Samuel L. Jackson